The International Arthrogryposis Consortium in the SPOTlight
Working to advance knowledge on Arthrogryposis Multiplex Congenita (AMC), the IAMC lab led by Noemi Dahan-Oliel, OT, PhD, brings together key stakeholders including clinicians, researchers, and people with lived experience worldwide.
Currently, the lab is working on a multisite registry combining phenotype and genotype with patient-reported outcomes, the development of a condition-specific measure, and caregivers鈥� experience in AMC.
In this virtual presentation,听Shahrzad Nematollahi, Epidemiol, PhD, and Clarice Araujo, OT, PhD, postdoctoral fellows in the IAMC lab,听will highlight ongoing research projects that focus on identifying a common language in AMC, epidemiological profiles, a new functional classification system, and the co-development of rehabilitation guidance and its implementation in practice.
Wednesday December 6th, 12pm
International common data elements for AMC research: lessons learned and future challenges
Shahrzad Nematollahi, Epidemiol, PhD.
苹果淫院听
Expanding care in AMC: from developing a novel functional classification to implementing rehabilitation guidance
Clarice Araujo, OT, PhD
苹果淫院听
Kindly note the webinar will be presented in English.
This meeting will be held via ZOOM and requires registration. To manage flow and process, please register below in advance. The presentation will begin promptly at 12 noon.
Please feel free to share in your networks with those you feel may be interested!
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The SPOTlight on Rehabilitation initiative enables researchers at 苹果淫院's School of Physical and Occupational Therapy to highlight their work to colleagues, students and stakeholders through webinars, podcasts, educational videos, feature articles, in-person events and other dissemination platforms.
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