/infoneuro/taxonomy/term/102/all en /infoneuro/channels/event/fcrn-inhibitors-and-novel-options-myasthenia-gravis-357538 <p>Muscular Dystrophy Canada (MDC) is pleased to present a webinar on the neonatal Fc receptor (FcRn) pathway for people with generalized Myasthenia Gravis (gMG).</p> Mon, 03 Jun 2024 15:43:26 +0000 madison.lemke@mail.mcgill.ca 1770 at /infoneuro /infoneuro/channels/event/updates-newborn-screening-spinal-muscular-atrophy-and-pompe-disease-356183 <p>Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on newborn screening for neuromuscular conditions, with a special focus on spinal muscular atrophy and Pompe disease.</p> Fri, 15 Mar 2024 18:24:38 +0000 amber.perry-marinov@mcgill.ca 1737 at /infoneuro /infoneuro/channels/event/advocacy-training-week-1-muscular-dystrophy-canada-power-and-purpose-advocacy-355139 <p>"Join us this Thursday, February 1 at 2pm EST for the ‘Power and Purpose of Advocacy’ session to learn how to influence change and why advocacy skills are needed for navigating a neuromuscular disorder in Canada."</p> Wed, 31 Jan 2024 15:45:56 +0000 amber.perry-marinov@mcgill.ca 1697 at /infoneuro /infoneuro/channels/event/point-view-life-neuromuscular-disorder-354673 Wed, 24 Jan 2024 17:43:22 +0000 amber.perry-marinov@mcgill.ca 1693 at /infoneuro /infoneuro/channels/event/toward-therapies-friedreich-ataxia-352293 <p>"Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on therapies for Friedreich ataxia.</p> Thu, 26 Oct 2023 18:20:58 +0000 amber.perry-marinov@mcgill.ca 1621 at /infoneuro /infoneuro/channels/event/building-national-duchenne-muscular-dystrophy-patient-registry-canada-352292 <p>"Muscular Dystrophy Canada (MDC) is pleased to present a webinar on patient registries and participating in a Duchenne muscular dystrophy (DMD) registry.</p> Thu, 26 Oct 2023 18:09:42 +0000 amber.perry-marinov@mcgill.ca 1620 at /infoneuro /infoneuro/channels/event/pompe-pursuit-seeking-early-diagnosis-349326 <p>"Muscular Dystrophy Canada (MDC) is pleased to present a webinar on the importance of an early diagnosis of Pompe disease and timely access to treatment. By the end of this webinar, we hope the following questions will be answered:</p> Tue, 01 Aug 2023 14:01:39 +0000 amber.perry-marinov@mcgill.ca 1560 at /infoneuro /infoneuro/channels/event/neuromuscular-mystery-case-rounds-343886 <p>Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to our next <a href="https://www.facebook.com/hashtag/letstalknmd?__eep__=6&__tn__=*NK*F">#LetsTalkNMD</a> Webinar- Neuromuscula</p> Mon, 28 Nov 2022 15:51:35 +0000 sabrina.burr@mail.mcgill.ca 1367 at /infoneuro